A 24-YEAR-OLD who thought his “protruding” eye might “fall out of his head” visited hospital nine times before being given a terrifying diagnosis.
Farid Oladapo was diagnosed with embryonal rhabdomyosarcoma – a type of soft tissue cancer – in June 2022, after noticing bruising and swelling on his right eye.
Farid Oladapo, 24, thought his eye might “fall out of his head” as it was “protruding” and covered in pussPA
PABut Farid claims he was sent home from hospitals nine times before being told he had a rare cancerous tumour on his optic nerve[/caption]
PAFarid was Farid was diagnosed with embryonal rhabdomyosarcoma – the tumour is shown here in a scan[/caption]
But the sports teaching assistant who lives in Sanderstead, south Croydon, said he visited multiple different hospitals nine times before receiving the diagnosis while in his final year at Brunel University London.
A spokesperson for Moorfields Eye Hospital NHS Foundation Trust has since said that Farid “was diagnosed and cared for in accordance with best practice national referral to treatment guidelines”.
Farid said his “mind was spiralling” after the diagnosis, and he underwent chemotherapy and radiotherapy.
At one point, he thought he was at “death’s door” due to experiencing complications during treatment in August 2022.
Farid said: “I thought to myself, everyone’s telling me that it’s going to go away, so maybe I’m overreacting and I’m just going to leave it – but my eye started to get really bad.
“My eye was protruding from my head – I’m assuming that my eye is coming out of my face – and I thought, if it keeps on coming out, it might fall out of my head.
“Every time I show people [the pictures], they can’t believe people were sending me home with my eye like that.”
Speaking about the impact of his diagnosis, he added: “My perspective on life has definitely changed.
“So when people complain about certain things, I think, when I was in hospital, there were three-year-olds walking around with tubes in their noses that have leukaemia and they’re not going to see the age that you are.
“You won’t understand unless you go through it, and I don’t want people to go through it, but I feel like I definitely appreciate life more.”
A series of setbacks
Farid first spotted a small bruise on his right eye in May 2022 but assumed it would “go down” over time.
He then noticed swelling around the eye, leading him to book a GP appointment, but after completing vision tests, he said doctors “sent him on [his] way”.
Although Farid’s vision was unaffected, the swelling progressively worsened and he said he visited the A&E department at Croydon University Hospital – not once, but several times.
“Every time I went to A&E, they did the same visual test repeatedly, and then afterwards they would just send me home,” Farid said.
A spokesperson for Croydon Health Services NHS Trust has since said “an urgent referral was made to Moorfields Eye Hospital” during his first attendance at the emergency department.
Farid decided to visit the A&E department at St George’s on June 3 2022 for a second opinion, and St George’s University Hospitals NHS Foundation Trust has said he was referred for ongoing care.
There was pus all over my eye, there was liquid on my face, the eye was going yellow
Farid Oladapo
Still in search of answers, however, Farid said his parents then paid £300 for a private medical consultation for him, where the same visual tests were completed – but this time, the consultant was “not sure” what was wrong.
Farid continued to monitor his eye, but over the following days the swelling worsened and he started to experience double vision and noticed his eye was “pointing slightly towards the right”.
He said he phoned the GP and was told by a doctor it was possible he had “something pressing on his brain” – but when he visited Croydon University Hospital again, he said staff completed the same visual test.
“In total, before I actually got anywhere with this, I think I went to hospital nine times before anybody told me [the diagnosis],” he said.
“My eye was coming out of my face, it went yellow – it was so horrible.
“The following day, or two days later, I could no longer close my eye as well, I couldn’t sleep, so I started getting agitated.
“There was pus all over my eye, there was liquid on my face, the eye was going yellow, and it was growing a yellow rubbery substance on top of it, like it was infected.”
Farid then visited Moorfields at St George’s, where he said his eye was stitched shut on June 8 in order to prevent further infection.
After having a scan, Farid was then told by doctors that a mass was causing his eye to protrude – and he said a biopsy during surgery on June 10 later revealed it was a cancerous tumour, specifically embryonal rhabdomyosarcoma.
‘At death’s door’
Farid feared the worst when he finally received his diagnosis.
“Whenever you hear cancer, you just assume that people die – that’s just what you know,” he said.
“My granddad passed away, my friend’s dad passed away, so that’s all I’ve known – I don’t think I’ve spoken to anyone who’s had cancer and lived to tell the tale.”
Farid started chemotherapy in June 2022, undergoing eight rounds at The Royal Marsden, and had radiotherapy in October for six weeks at University College London Hospital, followed by three more rounds of chemotherapy in January 2023.
Don’t wait till it’s too late, and trust your gut instinct
Farid Oladapo
He experienced side effects of extreme fatigue and pain – which still affect him now – as well as nausea, vomiting, and weight loss, and he said his hair started “falling out in the shower”.
Farid, who is 6ft 5in tall, suffered complications during treatment in August 2022, leading him to spend two weeks in intensive care where he was “in and out of consciousness”, and his weight dropped from 85kg to 60kg.
“I literally just looked like a bag of bones, I looked like a skeleton,” Farid said.
Rolling with the punches
Despite these setbacks, Farid was able to complete his degree, graduating in the summer last year.
And while he’s been left with slight blurred vision in his right eye, he has reached remission and will continue to have check-ups over the next 10 years.
Now he’s looking ahead to the future and has dreams of setting up his own football agency one day.
As part of Teenage and Young Adult Cancer Awareness Month in April, Farid wants to share his story to raise awareness of his symptoms and to encourage others to “trust your gut instinct” when it comes to your health.
“The biggest word I’d use about my cancer journey is unpredictable,” Farid said.
“You find out what kind of person you are when you’re in difficult situations… and once you go through it, you are a stronger person.
“You have to remain positive, you have to stay strong – not just for yourself but for the people around you – and you need to roll with the punches as well.
Signs and symptoms of embryonal rhabdomyosarcoma
Embryonal rhabdomyosarcoma, also known as “ERMS”, is a soft tissue cancer that develops in the cells in skeletal muscle.
It’s one of the most common soft tissue sarcomas in children, but is far rarer in adults, according to Sarcoma UK.
ERMS can occur anywhere in the body but it most often occurs in the head or neck, as well as the bladder, kidneys, and genitals.
The cancer is most commonly associated with infants, children under the age of five, and people under the age of 20.
There are an average of 36 cases of ERMS diagnosed every year in England, the charity said.
Symptoms of ERMS can vary depending on the size and location of your tumour.
The main symptom is a lump, lesion or swelling in the soft tissue of the body under the skin, often in the head or neck. This lump is often fast-growing, but usually painless.
A lesion in the head or neck can also cause other symptoms, such as:
Bulging of the eyes
Double vision
Swelling of the sinuses
Trouble swallowing or hearing
Lesions in the bladder, kidneys and genitals can cause:
Lumps or swelling in the genitals, commonly on the scrotum
Trouble peeing
Blood in the pee
People may also experience yellowing of the skin and the whites of the eyes, known as jaundice.
Source: Sarcoma UK
“Things will happen in your journey that you don’t expect, but you just need to go with it.”
Speaking about his advice to others, he added: “If you think something is wrong, keep going to the hospital.
“Don’t wait till it’s too late, and trust your gut instinct… and even in bad circumstances, there are still things you can take and enjoy and be happy about, so appreciate the little things.”
A spokesperson for Croydon Health Services NHS Trust said: “We are sorry to hear that Mr Oladapo was unhappy with the care he received.
“During his first attendance at our Emergency Department on 19 May 2022, an urgent referral was made to Moorfields Eye Hospital, a specialist in eye care.”
A spokesperson for Moorfields Eye Hospital NHS Foundation Trust said: “Mr Oladapo’s case was complex. Following a visit to A&E, he was referred to us for further checks where he was placed on an urgent cancer care pathway.
“The rare form of cancer that he was diagnosed with required a number of specialist tests to determine the most appropriate treatment option for him, however he was diagnosed and cared for in accordance with best practice national referral to treatment guidelines and started treatment for his cancer within 62 days of his initial referral.”
They urged Farid to contact their patient advice liaison service about complaints regarding his care.
Throughout his treatment, Farid was supported by Young Lives vs Cancer, a charity aiming to make sure young people with cancer get the right care and support at the right time.
PAFarid during chemotherapy[/caption]
PAFarid’s eye post-surgery[/caption]
The teaching assistant urged others to trust their gut if they think something is wrongPA”}]]